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Leslie - NYC Area

Art, Design, Music, Photography

"For all of my life I have needed more." - Elizabeth Wurtzel


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It's Complicated

Philadelphia in October

Pink Floyd, Rock and Roll Hall of Fame in Cleveland, Ohio,  2014

Gem Sculpture in NYC, 2014
NYC in Blue - September 2014
Leslie with Pseudohypoparathyroidism Type 1B Reaches out Fellow Patients, Researchers - Global Genes ™
My name is Leslie and I am 34-years-old with a rare genetic disorder called Pseudohypoparathyroidism Type 1b. This was proven by genetic testing at the Cleveland Clinic, but completed at a Johns Hopkins lab. I was diagnosed with it at age ten along with hypocalemia, but just recently had genetic testing at age 34 to confirm it because my symptoms have progressed. I don’t have any physical abnormalities visible to the eye. To a stranger I look fine, but I’m anything but.. I was also just diagnosed with Addison’s Disease in May of 2014. I was misdiagnosed with Lyme Disease, underwent heavy duty antibiotic treatment and followed a strict clean diet only to realize I didn’t have it. I have seen almost every kind of doctor you could think of, underwent extensive testing and brain MRI’s, full body scans, etc. I do not know what PHP 1b can do and I cannot find much as far as cases reported similar to mine. 
❝ Why is everything wrong? ❞

— LS

Pink Floyd, Rock and Roll Hall of Fame in Cleveland, Ohio, 2014

Airplane View 2014
❝ I pray for strength more than hope. ❞

— LS

"I’m really scared."
"All I seem to be good at is being a failure, actually a colossal failure that all started with a tick bite!  Oddly, I feel as if I’m finishing this blog to be something everyone can view to remember what some part of me was or at least wanted to be.  
The last thing I completed that I’m proud of is sadly, Luke Gram’s interview for Artchipel.  I feel like I’m falling, at the end of the road and what’s next?”
[by Thomas Hawk]
❝ All I really want is to not be here. ❞

— LS

I’m quoting Florence + the Machine here: 2/ 7/14

Worst Day Of Lyme : “I’ve never felt alive and so dead.”

❝ Nobody said it would be easy, but nobody ever said it would be so hard. ❞

— LS


Leslie Seuffert | Tumblr [Towson, MD]

(edited by wbsloan)

■ Top Posts Of 2013

Leslie Seuffert’s Top Posts of 2013

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Not including quotes which strangely often far outweigh any photography post in regards to notes!